Can real-world data power faster breakthroughs in rare diseases?
Dr. Kamal-Uddin discusses how Real-World Data has the power to transform how we understand and treat rare diseases.
The ARTEMIs consortium is showing how European collaboration and cutting-edge technology can transform liver disease research.
Funded by the Horizon Europe Health programme, this four-year initiative brings together leading institutions, clinicians, and technology partners to develop a Clinical Decision Support System (CDSS) for Metabolic Dysfunction โ Associated Liver Disease (MASLD) โ one of the fastest-growing global health challenges.
As Technical Coordinator, BC Platforms is leading the development of a secure hybrid infrastructure, advanced data collection workflows, and innovative analytics tools that enable clinicians and researchers to access, integrate, and interpret Real-World Data (RWD) across 14 European sites. These foundations are critical to achieving the projectโs long-term goal: improving patient outcomes through data-driven decision support.
While we are aware that the journey to achieving the project’s goal is filled with challenges and obstacles, we also know what a great impact our future achievements can have. I believe this project is the beginning of something truly meaningful and impactful, both at the patient level and for our company.
Laure Saint-Aubert, Director, Project Management, BC Platforms
The ARTEMIs Project aims to co-design, develop, and validate a proof-of-concept Clinical Decision Support System for the management of MASLD patients.
By combining clinical, imaging, and molecular data in a secure, federated environment, the system will help clinicians make faster, evidence-based decisions tailored to each patientโs profile.
BC Platformsโ hybrid infrastructure enables federated and central access to RWD, supporting the integration of virtual-twin models that simulate disease progression and treatment response. These virtual twins will empower clinicians and researchers to explore โwhat-ifโ scenarios and optimize care strategies before applying them in real life.
The ARTEMIs consortium demonstrates how collaboration across disciplines โ data science, clinical research, and patient engagement โ can accelerate breakthroughs in healthcare. By combining secure data infrastructure with patient-centric innovation, the project is laying the groundwork for scalable, ethical, and interoperable data use across Europe. Saint-Aubert adds:
The next phases of ARTEMIs will demonstrate how virtual-twin technology and trusted data collaboration can directly improve clinical decision-making, weโre shaping the future of evidence-based medicine.
As Technical Coordinator, BC Platforms remains committed to guiding the ARTEMIs Project through its next stages โ from proof-of-concept validation to real-world clinical deployment. Through hybrid data infrastructures, federated collaboration, and strong consortium partnerships, ARTEMIs continues to push the boundaries of innovation in liver disease management and precision health.
The ARTEMIs Project is funded by the European Unionโs Horizon Europe Programme under grant agreement Nยฐ 101136299.